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Hi, The questions below were sent to all three NS political parties. It was composed collaboratively with the groups that are members of the NSCES. I believe that you can make good use of this by forwarding it to your local candidates and requesting they fill it out and return it both to you and to me (for the Coalition) and that they encourage one to be filled out on behalf of the party as a whole and returned to me at ag487@chebucto.ns.ca To persons with environmental illness/multiple chemical sensitivity these issues are literally life & death, sickness and health. I suggests that you will find this a good way to get a better idea about how to vote. Please contact me if you have questions. David Wimberly ag487@chebucto.ns.ca Halifax, Nova Scotia http://www.geocities.com/RainForest/6847/ "Flectere si nequeo superos, Acheronta movebo" Virgil (If heaven I cannot bend, then hell I'll stir.) @@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@ Nova Scotia Coalition on Environmental Sensitivity 6095 Coburg Rd., Apt. 905 Halifax, Nova Scotia B3H 4K1 429-6309, fax: 429-2308 March 13, 1998 Attention: Premier Russell MacLellan and Liberal party candidates MLA Robert Chisholm and New Democratic party candidates MLA John Hamm and Conservative party candidates Dear Nova Scotia party leaders and party candidates: All three political parties have publicly made a commitment to improving Nova Scotia's health care and they have made it a leading priority in this election. To us, the important questions are: exactly how and when. For example, focusing on expensive high-tech equipment may divert attention and scarce resources from where help can be most effective, namely basic care, prevention, and education. Clean air, clean food and clean water are the foundations of improved health for the vast majority of those affected by Environmental Illness/Multiple Chemical Sensitivity (EI/MCS). In the field of EI/MCS we have particularly observed erosion of basic services and support such as comprehensive education, effective prevention, and availability and variety of treatments. Three to five percent of the population are strongly affected and thirty percent or more are somewhat affected by EI/MCS and the numbers keep increasing. Surely you know of friends, colleagues, and neighbours who are affected. Decisive action must be taken to halt the increase of this illness and to provide help for those already ill. This questionnaire is being submitted so we can provide information to the people of NS to allow them to judge the specifics of your generalized promises to improve NS health care. Our request is for an answer we can release from each party leader and each party as a whole. But we also request that you distribute this questionnaire to each of your candidates so they can all become more familiar with our issues, questions and needs. We also welcome their individual replies. Please answer our questions with a yes or no and add any comments you wish in the space afterwards. We will release the results of this questionnaire on Thursday, March 19, 1998. So please, we must have your written response no later than noon on Wednesday March 18. The specifics of your answer matter a great deal to us in our preparation for the election. Please respond via fax to 429-2308 or e-mail to ag487@chebucto.ns.ca. Thank you. QUESTIONS: 1. HOME CARE. Home care proposals have not included those with Environmental Illness/Multiple Chemical Sensitivity. Home care is frequently the best and most appropriate care available for people with EI/MCS. Many medical costs to both the patient and MSI would be avoided and much hardship could be alleviated with home care appropriate to EI/MCS. If elected, will you pledge to extend effective home care to those with EI/MCS within three months or during the first sitting of the legislature? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 2. INDOOR AIR QUALITY REGULATION Since the Westray tragedy in May 1992, the last two governments committed themselves to undertaking a comprehensive review of occupational health and safety in this province. In particular, this review focussed on needed changes to existing occupational health and safety legislation including the possibility of a new regulation on indoor air quality in non-industrial workplaces. After two years of intense efforts, the joint labour-management Working Group on Indoor Air Quality is close to finalizing this new regulation. However, the Department of Labour has yet to convene a meeting of the Working Group since October ro review a completely revised version of the regulation. For people with environmental sensitivities, the passing of this new regulation is especially urgent. It could greatly help to prevent them from being exposed to environmental stressors that adversely affect their health. These regulations would also help prevent others from becoming environmentally sensitive. Would your party as government commit to finalizing and implementing an indoor air quality regulation based on the efforts of the Working Group, and to providing adequate resources for public education and enforcement related to this regulation, within a year of taking office? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 3. SCHOOLS: Products and Practices Products, practices and the condition of school buildings all impact on School children's health and ability to learn. School boards are responsible to provide a safe learning environment so that children can learn effectively and maintain their health and well being. With the help of several government departments progress is being made, but there is still much to be done. Many schools with significant Indoor Air Quality problems were not identified by the school boards in the recent Capital Construction Project. Will your government take immediate and continuous action to ensure all school boards identify and correct any further school Indoor Air Quality problems? Yes_______ No_______ Comments? ___________________________________________________________________ Will your government also take the financial steps necessary to ensure that ALL of the province's school children spend their days in healthy buildings? Yes_______ No______ Action Plan:_________________________________________________________________ _____________________________________________________________________________ 4. PESTICIDES By this time of year, most of us are looking forward with great anticipation to the warmth, light, and new growth of the spring and summer months. However, for some it is an anticipation tinged with dread, the time of pesticide spraying and other chemical treatment of lawns. We are all at risk from the effects of these chemicals, but for some even minute exposure from the drift of these toxic chemicals is life-threatening. Evacuation for 3-7 days, whether planned or unpredictable, many times in a summer should not be part of anyone's normal life. Children should be safe from toxic chemical exposure as they walk to and from school. Will your party take steps to insure that we and our children are protected from these dangerous and poorly regulated chemicals, and will your party take steps to protect the most vulnerable so that they can be safe in their own homes? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 5. SABLE GAS In the largest clinical study of Environmental Illness/Multiple Chemical Sensitivity ever (of 47,000 patients), natural gas was "the most important source of indoor air pollution responsible for generating illness." Outdoor uses such as generating electricity do not harm those with EI/MCS, but all uses indoors in buildings people inhabit will cause harm. Mere ventilation has proven ineffective due to the inevitable permeation of buildings and entire neighbourhoods by this extremely volatile natural gas, its contaminants, its toxic additives, and its inevitable by-products of combustion. This is an extremely important property of natural gas use that has been ignored or suppressed outside the community of doctors and patients with EI/MCS. A great deal of harm and cost can be avoided by giving careful attention to this fact now. With the impending development of the Sable gas reserves, will you as our future legislators undertake to keep natural gas service out of our neighbourhoods where people live, such as homes, schools, hospitals and libraries, and public venues such as offices, malls, theatres and grocery stores, in order to protect those who are already chemically sensitive and to protect others from becoming sensitive to this gas? Yes ________ No_______ Comments? ___________________________________________________________________ _____________________________________________________________________________ 6. PARTNERING/CONSENSUS BUILDING Patients and Nova Scotia Environmental Health Centre staff have been meeting to discuss a Partnering and Consensus Building process to explore ways to resolve the many issues and opportunities in providing comprehensive and effective treatment, education, protection and research in this field for the benefit of Nova Scotian citizens. To be effective, this process requires the wholehearted participation and commitment of all stakeholders, including the provincial government. If elected, will you pledge an empowered representative to this partnering/consensus building process? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 7. WAITING LIST Given that many hundreds, if not thousands, of Nova Scotians are suffering from and sometimes incapacitated by Environmental Illness; and many have been on the waiting list for the NSEHC for years with little chance of ever being treated; and these people have been forced to spend thousands of dollars on treatments; what will your government do to ensure access to appropriate, effective affordable treatment for these people? ____________________________________________________________________________________ ____________________________________________________________________________________ Will your government take steps to ensure that the treatments for Environmental Illness are covered by MSI, as are treatments for cancer, diabetes, pneumonia, broken limbs, etc.? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 8. CONTRACT MANDATE FOR NS ENVIRONMENTAL HEALTH CLINIC A NS Department of Health White Paper of 1992 outlines the three armed mandate of treatment, education and research for the NSEHC. The subsequent contract for the NSEHC was kept secret from interested parties, namely patients, potential patients, family physicians and the public. Only through the Freedom of Information Act, have we recently obtained a copy of this contract and confirmed our suspicions that the NSEHC is specifically mandated for research only. This directly contravenes the Dept. of Health's own recommendation in the White Paper. As a consequence, there are numerous concerns from many quarters including from many patients whose needs are no longer being met. Patients have been cut off from previously successful treatments. Over 1200 people on the waiting list face a 4 -or more- year waiting list to be seen. After years on the waiting list, some have been told they will never be seen even although they suffer daily from environmental illness. Will your party, if it comes to power, restore the NSEHC's three armed mandate 1) to provide Standard Medical Environmental Illness treatments, 2) to provide comprehensive public and individual education, and 3) to perform clinical research? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 9. LANGLEY REPORT The Report of the Advisory Committee on Environmental Hypersensitivity submitted to the Deputy Minister of Health, June 24,1997, has been made public and circulated. There have been tremendous criticisms about the Report, especially about the "Clinical Guidelines for the Management of Environmental Hypersensitivity for NS Physicians." These guidelines are utterly inadequate, a violation of the Hippocratic Oath for Physicians, and potentially very dangerous for people with environmental illness. Should your political party be elected would you ensure that the Langley Report is rejected, including the conclusions and recommendations, and a new set of guidelines on environmental illness for NS Physicians be prepared consistent with the American Association of Environmental Medicine Treatments, and that these be distributed within the three month period after your election? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 10. BERESFORD REPORT The Report on Environmental Hypersensitivity in Response to the Report of the Advisory Committee to the Minister of Health, January 5,1998, submitted by Dr Patricia Beresford has been made public and circulated. This is an excellent, comprehensive and accurate report of benefit to those with, or at risk of, environmental illness. Should your political party be elected would you study and adopt the Dr. Beresford Report and begin to implement its recommendations within the three month period after your election? Yes ________ No_________ Comments? ___________________________________________________________________ _____________________________________________________________________________ 11. CAMP HILL HOSPITAL REPORT The Report of the Evaluation of the Camp Hill Hospital Staff Affected by the Veterans Memorial Building Syndrome was prepared for the Department of Health jointly by the Nova Scotia Environmental Medicine Clinic and the Environmental Health Center-Dallas, Texas, in May, 1993. This document was never released or implemented, consequently many victims of the Camp Hill Hospital Incident have not received the recommended treatments. Should your political party be elected would you ensure that this Report is immediately made public and quickly implemented? Yes ______ No______ Comments? ___________________________________________________________________ _____________________________________________________________________________ Please answer our questions with a yes or no and add any comments you wish in the space afterwards. We will release the results of this questionnaire on Thursday, March 19, 1998. So please, we must have your written response no later than noon on Wednesday March 18. The specifics of your answer matter a great deal to us in our preparation for the election. Please respond via fax to 429-2308 or e-mail to ag487@chebucto.ns.ca. Thank you.
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